Provider and patient perspectives on the diagnosis and treatment of Alzheimer's disease

Authors

• Philippe Amouyel, Foundation Alzheimer
• Sandrine Andrieu, CHU de Toulouse
• Angela Bradshaw, Alzheimer Europe
• Ralph C. Carmona, University of California
• Magali Dumont, Foundation Alzheimer
• Lea Tenenholz Grinberg, University of California San Francisco
• Takeshi Iwatsubo, University of Tokyo
• Oskar Hansson, Lund University
• Clifford R. Jack, Mayo Clinic Rochester
• Gregory A. Jicha, University of KentuckyFollow
• Simin Mahinrad, Alzheimer's Association
• Eric McDade, Washington University School of Medicine in St. Louis
• Catherine J. Mummery, University College London
• Ronald C. Petersen, Mayo Clinic Rochester
• Shelagh Robinson, Alzheimer Europe
• Julie A. Schneider, Rush University
• Lenny Shellcross, World Dementia Council
• Amanda G. Smith, University of South Florida
• Heather M. Snyder, Alzheimer's AssociationFollow
• Beth Tapply, Alzheimer Europe
• Charlotte Teunissen, Vrije Universiteit Amsterdam
• Wiesje M. van der Flier, Vrije Universiteit Amsterdam
• Bruno Vellas, CHU de Toulouse
• David Wallon, Université de Rouen
• Jeff D. Williamson, Wake Forest School of Medicine
• Donna Wilcock, University of Kentucky
• Maria C. Carrillo, Alzheimer's Association

Abstract

Since 2016, the Alzheimer's Association and the Fondation Alzheimer have hosted Global Alzheimer's Leadership Series (GoALS) global think tanks, with world-leading experts for innovative discussions to advance Alzheimer's disease (AD) research and care. The second GoALS think tank, held in June 2024 in Paris, focused on the relationship between biological changes and clinical manifestations of AD in the context of the evolving therapeutic landscape. Discussions spanned real-world experiences of providers, patients, and their families, theoretical considerations, and health system challenges. The lived experience perspective was central to these discussions. The importance of shared decision-making, clear and transparent communication, and the need for real-world data to holistically support patients during their experiences were highlighted. This manuscript shares key insights from both the think tank meeting in Paris and a featured research session at the 2024 Alzheimer's Association International Conference that expanded the discussion themes for broader dissemination with the community.

Document Type

Article

Publication Date

6-1-2026

Notes/Citation Information

Publisher Copyright: © 2026 The Author(s). Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association.

Digital Object Identifier (DOI)

10.1002/alz.71536

Archival?

Archival

Repository Citation

Amouyel, Philippe; Andrieu, Sandrine; Bradshaw, Angela; Carmona, Ralph C.; Dumont, Magali; Grinberg, Lea Tenenholz; Iwatsubo, Takeshi; Hansson, Oskar; Jack, Clifford R.; Jicha, Gregory A.; Mahinrad, Simin; McDade, Eric; Mummery, Catherine J.; Petersen, Ronald C.; Robinson, Shelagh; Schneider, Julie A.; Shellcross, Lenny; Smith, Amanda G.; Snyder, Heather M.; Tapply, Beth; Teunissen, Charlotte; van der Flier, Wiesje M.; Vellas, Bruno; Wallon, David; Williamson, Jeff D.; Wilcock, Donna; and Carrillo, Maria C., "Provider and patient perspectives on the diagnosis and treatment of Alzheimer's disease" (2026). Neurology Faculty Publications. 146.
https://uknowledge.uky.edu/neurology_facpub/146