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Abstract
Background: Studies that identify children after acute trauma and prospectively track risk/protective factors and trauma responses over time are resource-intensive; small sample sizes often limit power and generalizability. The Prospective studies of Acute Child Trauma and Recovery (PACT/R) Data Archive was created to facilitate more robust integrative cross-study data analyses.
Objectives: To (a) describe creation of this research resource, including harmonization of key variables; (b) describe key study- and participant-level variables; and (c) examine retention to follow-up across studies.
Methods: For the first 30 studies in the Archive, we described study-level (design factors, retention rates) and participant-level (demographic, event, traumatic stress) variables. We used Chi square or ANOVA to examine study- and participant-level variables potentially associated with retention.
Results: These 30 prospective studies (N per study = 50 to 568; overall N = 5499) conducted by 15 research teams in 5 countries enrolled children exposed to injury (46%), disaster (24%), violence (13%), traffic accidents (10%), or other acute events. Participants were school-age or adolescent (97%), 60% were male, and approximately half were of minority ethnicity. Using harmonized data from 22 measures, 24% reported significant traumatic stress ≥1 month post-event. Other commonly assessed outcomes included depression (19 studies), internalizing/externalizing symptoms (19), and parent mental health (19). Studies involved 2 to 5 research assessments; 80% of participants were retained for ≥2 assessments. At the study level, greater retention was associated with more planned assessments. At the participant level, adolescents, minority youth, and those of lower socioeconomic status had lower retention rates.
Conclusion: This project demonstrates the feasibility and value of bringing together traumatic stress research data and making it available for re-use. As an ongoing research resource, the Archive can promote ‘FAIR’ data practices and facilitate integrated analyses to advance understanding of child traumatic stress.
Document Type
Article
Publication Date
3-10-2020
Digital Object Identifier (DOI)
https://doi.org/10.1080/20008198.2020.1729025
Funding Information
Development of the PACT/R Data Archive funded in part by the US National Institute of Mental Health (NIMH) R21MH086304 and the US National Institute of Child Health & Human Development (NICHD) R03HD092720.
Related Content
The data that support the findings of this study are available upon request from the PACT/R Data Archive. https://childtraumadata.org/use-pactr-data
Repository Citation
Kassam-Adams, Nancy; Kenardy, Justin A.; Delahanty, Douglas L.; Marsac, Meghan L.; Meiser-Stedman, Richard; Nixon, Reginald D. V.; Landolt, Markus A.; and Palmieri, Patrick A., "Development of an International Data Repository and Research Resource: The Prospective Studies of Acute Child Trauma and Recovery (PACT/R) Data Archive" (2020). Pediatrics Faculty Publications. 305.
https://uknowledge.uky.edu/pediatrics_facpub/305
Notes/Citation Information
Published in European Journal of Psychotraumatology, v. 11, issue 1.
© 2020 The Author(s)
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.