Year of Publication

2015

Degree Name

Master of Science in Communication Sciences & Disorders (MSCSD)

Document Type

Master's Thesis

College

Health Sciences

Department

Communication Sciences & Disorders

First Advisor

Dr. Jane O'Regan Kleinert

Abstract

Down syndrome, also known as Trisomy 21, is the most commonly occurring chromosomal abnormality present at birth. The Centers for Disease Control and Prevention estimates that there are approximately 6,000 diagnoses of Down syndrome per year in the United States, further indicating that 1/700 infants are born with Down syndrome. A diagnosis of Down syndrome can be made either prenatally or postnatally. Early intervention services will be warranted to address underlying deficits associated with the syndrome, (i.e., speech-language/feeding/swallowing). Communicative disorders are among the most prominent concomitant deficits associated with Down syndrome. Therefore, it is critical that parents/caregivers of children with Down syndrome be provided with information and referrals specifically related to speech-language pathology services in a timely manner. This study surveyed parents/caregivers of children with Down syndrome, from various Down syndrome associations (5) in the state of Kentucky and the Down Syndrome Association of Greater Cincinnati, located in Ohio, to assess parent/caregiver overall satisfaction of information and referrals received specifically related to speech-language pathology services, including the types and time at which the information and referrals were received. Implications of the results of this study and areas for future research are discussed.

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