Racial and ethnic minorities currently comprise 20% of the U.S. population; in 2050, this figure is expected to rise to 42%. As a result, Alzheimer’s disease (AD), the 5th leading cause of death for people aged 65 and older, is likely to increase in these groups. Most dementia caregiving for these populations comes from family and friends, especially among families with lower socioeconomic status. A convenience sample of 30 African-American dementia caregivers was interviewed to determine unmet needs. Participants expressed a limited desire for formal services, such as support groups, legal advice, case management, and homemaker services. Instead, commonly expressed needs were daytime respite care and especially a desire for family and social support. Many caregivers expressed a need for other family members to share responsibility in the process; therefore, methods for caregiver support that address multiple family members in care provision may be beneficial for this group.
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This study was partially supported by funding from P30 AG028383.
Desin, P. J.; Caban-Holt, Allison M.; Abner, Erin L.; Van Eldik, Linda J.; and Schmitt, Frederick A., "Factors Associated with Unmet Needs among African-American Dementia Care Providers" (2016). Sanders-Brown Center on Aging Faculty Publications. 70.